My Daddy Has Epilepsy
by Stacey Chillemi
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Category: Children
Publisher: Lulu.com ISBN-10: 1430302209 Type:
Pages: 62
Copyright: December 3, 2006 ISBN-13: 9781430302209
Non-Fiction
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This new edition of My Daddy Has Epilepsy uses lively, subversive illustrations to show how to understand what epilepsy is and what to do if someone is experiencing a seizure. This picture book is sure to elicit a clear understanding—and opportunity to eliminate children's fear of epilepsy—from all who read it. In this new edition all illustrations are now in color and the book is larger in width and height.
Description:
Author Stacey Chillemi and Illustrator Iacovos Kyriakides provide spectacular proof that children really understand more than you think. Illuminating the cartoon illustrations of confusion and fear that epilepsy can cause, this new edition of My Daddy Has Epilepsy uses lively, subversive illustrations to show how to understand what epilepsy is and what to do if someone is experiencing a seizure. This picture book is sure to elicit a clear understanding—and opportunity to eliminate children's fear of epilepsy—from all who read it. About the Author STACEY CHILLEMI is constantly tempted to help others with epilepsy and help their family on what it is, how to cope with it, how to get on with their lives, and more. In this edition all illustrations are now in color.
Product Details:
Publisher's comments:
This book has been selling well and the positive feedback we have received is unbelievable.
Author bio(s):
MY ACCOMPLISHMENTS:
AUTHORS ACCOMPLISHMENTS:
I am an H.O.P.E. Mentor, for the Epilepsy Foundation. I have spoken at different events for schools, organizations, political events, I spoke in front of Congress in Washington and anywhere my help is needed to educate people about epilepsy. I was on four talk shows. The interviews focused on the importance of understanding what epilepsy is, how to help someone having a seizure and giving people with epilepsy encouragement and hope for the future.
I have been on radio stations discussing epilepsy and I have appeared in many newspapers all over New Jersey such as, The Leader, Belleville Post and the Star Ledger. In addition, on June 26, 2002, I was honored an award by the Epilepsy Foundation of New Jersey for Outstanding Volunteer Award.
I have received awards in my achievements and certificates in recognition for outstanding efforts in trying to improve society. I have been an active participant in organizations and activities.
I have written many published articles. I have appeared on talk shows and I had articles written about my efforts to help people with epilepsy.
Author bio(s):
BOOKS PUBLISHED BY STACEY CHILLEMI:
1. Epilepsy You're Not Alone
2. Eternal Love: Romantic Poetry Straight from the Heart
3. My Mommy Has Epilepsy (Children's Book)
4. My Daddy Has Epilepsy (Children’s Book)
5. Keep the Faith: To Live and Be Heard from the Heavens Above (poetry book)
6. Live, Learn, and Be Happy with Epilepsy
7. Epilepsy and Pregnancy: What Every Woman Should Know
Co-authored by Dr. Blanca Vasques
8. Faith, Courage, Wisdom, Strength and Hop
9. How to Be Wealthy Selling Informational Products on the Internet
10. How to Become Wealthy in Real Estate
11. How to Become Wealthy Selling Ebooks
STACEY CHILLEMI STORIES AND POETRY HAVE BEEN PUBLISHED IN:
· Chicken Soup for the Recovering Soul
· Chicken Soup for the Shoppers Soul
· Whispers of Inspiration
ACCOMPLISHMENTS:
H.O.P.E. Mentor, for the Epilepsy Foundation
Speaker at different events for schools, organizations, political events
Spoke in front of Congress in Washington for employment discrimination for people with epilepsy
Appeared on four talk shows to discuss epilepsy focusing on the importance of understanding epilepsy, how to help someone having a seizure and giving people with epilepsy encouragement and hope for the future.
Appeared on radio stations discussing epilepsy
Appeared in newspapers all over New Jersey such as, The Leader, Belleville Post and the Star Ledger.
June 26, 2002, I was honored an award by the Epilepsy Foundation of New Jersey for Outstanding Volunteer Award.
Received awards in my achievements and certificates in recognition for outstanding efforts in trying to improve society.
Active participant in organizations and activities.
Published over 200 articles.
EDUCATION:
Stockton College, Pomona NJ
Associate Degree in Business
BA in Marketing
Minor in Advertising.
CAREER EXPERIENCE:
Worked for NBC on Dateline
Channel 4 News
Today Show
Currently Managing Editor for the Fashion Magazine UZURI.
Own Freelance Company
Table of contents:
"My Daddy Has Epilepsy," is children's story book with illustrations on each page. The author included extra pages on the back to write notes about any important factors about epilepsy.
The author was motivated to write this book after she had a seizure with the kids (ages 7, 5, and 2 years) while walking the dog. Chillemi feels it is important for a child to understand what epilepsy is, not to fear epilepsy, and what to do if someone you love is having a seizure.
This is what the book entails.
EDITORIALS REVIEWS
Very Easy to Read
I found this book a very easy read, which is important in trying to explain epilepsy to children. To educate children of the disorder is something that might seem like a difficult task, something that’s pushed off to the side for a later date. However, with this book, it’s a task that doesn't look so daunting. You can explain epilepsy to your children in language that they understand.
Educational
I found this book very insightful. Although not having epilepsy myself, I think this book is a good way to explain to children about epilepsy. I, myself, learned quite a bit about the disorder from reading it. Being prepared and knowledgeable is the best way to help someone with epilepsy. This book helps children become prepared.
Excellent book
Stacey Chillemi is 32 years old, a mother of three, a wife and writer. Her journey and reason for being is defined each day by the happiness in her children’s eyes and the people with epilepsy she has helped through her writing.
By Jenna Martin, Senior Editor
https://www.epilepsy.com
Excerpt
Hello, my name is Stacey Chillemi and I am the author of this children’s book, “My Daddy Has Epilepsy.” I am writing this piece to you to explain what the book is about and how this children’s book can help you and your family understand, cope and not fear the disorder known as epilepsy. In the year 2000, my husband and I had moved into a new neighborhood with my 2 sons, and my daughter. All three children were toddlers at the time. Even though I developed epilepsy at the age of 5 my kids had never witness me having a seizure.
One day I was outside my home and I had an aura I felt a seizure beginning to evolve and before I new it I was having the seizure in front of my children for the first time. My children were scared and even though I had explained my disorder many times they were still a bit confused about what epilepsy is, what happens and what to do if someone is having a seizure.
You can explain what a seizure is, but honestly to see someone have a seizure, especially for a child can be scary and very dramatizing. After the seizure my children were very scared, confused, and worried about their mommy and they had many questions to ask afterwards.
I tried to explain everything to them in simplistic terms, so they could understand epilepsy better, but everything didn’t seem to click. They were still confused, scared, and worried. They wanted to help me, but they didn’t know how.
So one day I sat down wrote a story about the day I had a seizure. I explained what epilepsy is, and what to do if someone has a seizure. My goal was to educate and try to explain to my children why they shouldn’t fear epilepsy and seizures.
When someone understands epilepsy and they know what to do you’ll notice that the fear begins to disappear and the situation (having the seizures) is treated with more confidence and children are able to cope with their love one’s disorder better.
The story and the illustrations I created helped my children understand my disorder completely. And they’re not afraid of my seizures anymore. They know what to do and the fear of their mommy having seizures has gone away. It’s a part of mommy. It’s a part of her life and now they have learned to accept it. In fact my daughter many times has introduced as, “Hi this is my mommy and she has epilepsy!”
I put many epilepsy resources in the back to help educate you and your children.
Epilepsy is not going to stop me from enjoying life. In my eyes, I am winning the battle because I have not even up on life. I am determined to live a happy, healthy and productive life with my family and friends.
And so you’re not confused I would like to explain why they are two versions of the book. When I first published the book they only allowed me to publish it with black and white illustrations and the size of the book came in 6x9.
To their surprise the book did so well that they allowed me to publish the book with all color illustrations and the book is much larger now.
Version 1 Black and White Illustrations
Version 2 Color illustrations and it is a larger book.
Thank you,
Mrs. Stacey Chillemi
Professional Reviews
Published in the Asbury Park Press Newspaper
BY ALESHA WILLIAMS STAFF WRITER
Chillemi gives people encouragement, hope, to help them realize that they are somebody.
Kathleen Wells -Journalist
Stacey was on their talk show New Jersey women sharing her experiences concerning epilepsy and her book.
Della Cruz Anchor/Reporter, Talk Show Host for News
'Life deals us many hard blows that we often don't expect. I admire the fact that someone like Stacey Chillemi was thrown a curve ball that may have knocked many of us down to the point where many of us may not have wanted to get back up, but she did. It wasn't easy but she possesses a determined spirit that won't let her give up. For that reason Stacey will go far and achieve whatever dreams she sets her mind to accomplish.’ Della Crew